Tonight Bubble and I were snuggling in bed after singing songs. She was chatting about her favourite part of the day and I have to tell you some of her sentences didn't make any sense but she always makes me laugh.
Then she said "Mummy I am going to hospital!"
We have been gradually introducing her to the words operation and hospital but tonight she showed just how much she understood.
We were told Bubble had a condition back in March 2010. Something we had never heard of before. Cranial Synostosis. We now know in her case that it means the soft skull plates which fuse together after birth actually fused too early down the centre of her skull. It has resulted in an oval shaped head or what has been called a "funny shaped head" although there is nothing funny about it.
On 14th July the team at the Children's Hospital Randwick will correct the condition so her brain isn't restricted and has room to grow. Otherwise she could develop pressure on the brain as she gets older. It involves reshaping her skull bones so they are more rounded.
Tonight we spoke about staying in hospital and all the things we can take with us to make her room feel really special. There is the crocheted rug I made for her, handmade toys, photos and G-Raf who we have named Jirafa (hea ra fa) which is Spanish of course just like all our handmade toys. Big hug to Claire for sending me the kit to make him.
We decided Jirafa would also need surgery just like Bubble. He'll be getting needles, bandaids, bandages, blood transfusion if he needs it too. This wasn't something I had planned. It just flowed with the conversation and seemed so perfect. So Jirafa is now on this journey with all of us and I hope he is just as brave as Bubble.
Something else which is very special are the handmade hats, beanies and berets she'll be wearing after the operation. There will be crocheted ones, knitted ones & sewn ones. Bubble absolutely understands the love of handmade so a few friends are already on the case.
After all a new head deserves a new hat... Or two.